TEENAGERS AND VACCINES

Most parents, even brand new ones, expect a lot of vaccines in their children’s first few years of life. There are many diseases that we can protect children from – including whooping cough (pertussis), chicken pox (varicella), and the flu – and most well-child visits include at least one shot. But as our kids grow, the shots are fewer and further between until it seems like they’re only getting a flu vaccine each year (speaking of – now’s the time to get yours!).

However, there are many important vaccines that teenagers should get as well. The Centers for Disease Control (CDC) recommends that children between 11-12 get a Tdap booster and a meningitis vaccine, as well as start the HPV series. When your high schooler is 16 years old, a meningitis booster is needed and many pediatricians also start the Meningitis B vaccine series at that age as well.

What in the world are all these diseases and acronyms? Let’s break it down so that you and your child know what to expect and understand the importance of each of these vaccines.

Tdap vaccine

In the first four years of your child’s life, she likely received 5 DTaP shots that protected her from diphtheria, tetanus and pertussis (whooping cough). However, over time the protection the vaccines provide slowly decreases so when kids are 11 years old we give them a booster, confusingly called Tdap instead of DTaP, which provides further immunity against the same diseases. All of these diseases are caused by bacteria. Diphtheria, which causes a very serious throat infection, and pertussis can both spread person to person through sneezing or coughing; we see pertussis outbreaks even in local schools in DC. Tetanus is caused by a toxin made by bacteria in soil and enters the body through cuts, scrapes or puncture wounds to the skin. It can cause muscle spasms and even breathing problems or paralysis. All good reasons to make sure you are up to date with your booster shot!

Meningococcal Vaccines

Most parents have heard of meningitis or seen the very emotional commercials on TV encouraging them to vaccinate their children. This vaccine protects children from any illness caused by a bacteria called Neisseria meningitides, which can lead to an infection of the fluid and lining around the brain and spinal cord or an infection in the blood. Meningococcal disease passes from person to person through saliva – through things like kissing or sharing a drink – and easily spreads when people live in close quarters such as college dorms. This is why we make sure children are fully vaccinated against this disease before they head off to college. Infections caused by Neisseria meningitides are very serious – the CDC estimates that even with treatment about 10 to 15 out of 100 people will die from it.

The meningitis vaccine that children get at 11 years old protects against four types of the bacteria – A, C, W, and Y. In recent years there have been outbreaks of a fifth kind, Meningitis B, on college campuses with some deaths attributed to it. Therefore, the CDC recommends that teenagers also receive a vaccination against Meningitis B. There are two forms of the vaccine available (one is a three shot series and one is a two shot series) so talk with your pediatrician to see if this is a good choice for your teenager.

HPV Vaccine

Infection with the Human Papilloma Virus (HPV) causes 31,000 cases of cancer in women and men a year according to the CDC. While there are over 150 different strains of HPV, they do not all cause cancer. Thankfully we now have a vaccine that protects against the nine strains of HPV that are most likely to cause cancer.

With the HPV vaccine, starting early is best! Studies have shown that kids 11-15 years who complete the HPV vaccine series show such a good response that only two vaccines total are needed. For older teens who are unvaccinated against HPV, three shots total are needed. Therefore your pediatrician will likely recommend your child receive his or her first HPV vaccine at the 11-year old appointment.   Hopefully more cancer preventing vaccines, like the HPV vaccine, are in our future!

NEW YEAR’S RESOLUTIONS FOR YOUR FAMILY FROM SPRING VALLEY PEDIATRICS

The New Year is a time for us to reflect on how to improve our lives and family lives. Read on for tips from Dr. Jessica Long on how to set realistic goals for your family in 2018…

Somehow 2018 has snuck up on us. Between the fun chaos of winter break and the holidays with small children, my family neglected to figure out new years resolutions ahead of time. Now that we are settling back into our routine – and it’s too cold to do anything else – I finally sat down to think of ways we could come together even more as a family in 2018.

Top of the list is screen time. Though as a pediatrician I am all too aware of the negative consequences of my children being glued to a screen, I far too often give myself a pass. Which is not entirely fair. When our phones are down, we speak 5 times as many words to our babies and toddlers who are acquiring language skills, we engage more meaningfully with our children who thrive on individualized attention from us, and we model appropriate behavior for our adolescents who are starting out in the electronic world. So starting in 2018, my phone will be hidden at meal time, it will be far from me when we do family movie or game night, and I will leave my Instagram stalking to after my children are asleep.

Before I had children, volunteering was a big part of my life – I loved participating in weekend service projects and spent summers doing medical volunteering abroad. Sadly, volunteering has taken a way far back seat since having children, partially because I felt it was too hard to include my kids. This year we are changing that! Turns out there are lots of ways even small children can meaningfully participate in community service and – no surprise – they love it. Our family resolution is to do a minimum of one family service outing a season. First up will be delivering meals to home bound seniors through Food and Friends and after that we’ll try a Sunday morning at The DC Diaper Bank. Your kids will be most excited if you initially tap into their interests – take your animal lover to spend time at the Humane Rescue Alliance or have your budding artist make get well cards for hospitalized children. Once you see how fun and easy it is to volunteer as a family, I have no doubt this will be an easy resolution to keep.

Last up will probably be the hardest – introducing new foods to everyone! Like all families with young children, dinner often feels like a constant rotation of “kid food”. My girls are not adventurous eaters at all but 2018 is the year to change it! To expand their palate, we are going to put them to work. Involving your kids in the shopping and cooking process makes them more likely to at least give the spoon a lick at dinner time. Once it gets warm, I am determined that we will finally successfully grow vegetables in our garden which will hopefully pique their interest in eating something they helped to cultivate. Will my children start requesting wheatgrass smoothies and lamb vindaloo? Unlikely, but at least it’s a step in the right direction.

Cheers to a healthy and fun 2018 with your loved ones. What resolutions will you make with your family?

Have a safe and happy Halloween

The 411 on the Flu

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It’s that time of year again…time to get your flu shot. With the kids back in school and freezing temps on the way, now’s the time to schedule your shot. Dr. Jessica Long gives us the lowdown on the flu and why it is so important to get vaccinated.

As a pediatrician, I see things through a different lens than the average parent. It’s a blessing and a curse. Back to school to me doesn’t just mean new clothes and backpacks – it means the swapping of germs with all your classmates. Grapes are tasty, nutritious choking hazards that must be cut into quarters. Monkey bars are fun and great for motor development but also keep emergency rooms in business. The long-awaited arrival of Fall means comfy sweaters and the rustle of fallen leaves…but also your flu shot is due! I can be such a killjoy, or so my husband says.

Flu peaks in the United States during December through March but we can see cases as early as September and as late as May. That’s what makes this time of year perfect for getting your annual flu vaccine since it takes two weeks to receive maximum protection from it. Just as in 2016, this year only the flu shot is available since the Flu Mist (the nose spray form of the vaccine) was not protecting people as much as we would like.

Avoiding contact with the flu virus is nearly impossible, so vaccination is the best way to ensure you do not get the flu this season. Flu spreads through droplets made when people cough, sneeze, or talk, making it very easy to share among your office, school or family. You can also get the flu by touching a surface or object that has the flu virus on it and then touching your own mouth, eyes or nose. In fact, the flu virus can live on a hard surface for 24 hours – gross!

Even though we all try to stay home and away from others when we are ill, you may have spread the flu before you were even sick! Most healthy adults can infect others with the flu one day before they have symptoms. People can remain infectious for 5-7 days after becoming sick. Some, like our young children, might be able to infect others for an even longer period of time.

Most people are familiar with the common symptoms of the flu (fever, cough, sore throat, stuffy nose, muscle aches, headache, and fatigue) but kids can also have vomiting and diarrhea. Our children are also more likely to develop “secondary infections” – a bacterial infection on top of the flu – such as an ear infection or pneumonia. And while we all know the flu is miserable, it’s easy to forget that for many of our friends and neighbors, especially infants and the elderly, it can be truly dangerous.

If all of this hasn’t convinced you to head over to your doctor’s office for the flu shot, remember that not only do you protect yourself with your vaccine but you also protect all of those important people around you from getting sick this flu season as well! Your kids will thank you for it!

Solar Eclipse – Eye Safety

Thank you to the physicians at Children’s National Medical Center for providing these great tips for enjoying the upcoming solar eclipse safely.

Solar Eclipse

Eye Safety for Viewing a Solar Eclipse

On August 21, 2017, there will be a solar eclipse.  People across the United States will fall under the path of this rare solar eclipse, and depending on their location, may witness a total solar eclipse. Eye safety is very important when viewing a solar eclipse. Without safe viewing and appropriate eye protection, permanent eye damage can occur. Eye experts at Children’s National have provided some vital information on what you can expect to see and how to view the eclipse safely.

 

What will I see during the eclipse?

During a total eclipse, the sun will gradually disappear behind the moon then reappear. The sun’s outer “corona” will be visible at this time. Depending on your location, a partial eclipse will be seen, which is when the moon covers a portion of the sun.

 

How long will the eclipse last?

The whole continent will experience a partial eclipse event, lasting 2 to 3 hours in which the moon will cover part of the sun. The total solar eclipse only lasts 2 to 3 minutes and can be seen within a 70-mile wide path from Oregon to South Carolina. The moon will completely block the view of the sun in this pathway.

 

How can the eye be damaged by viewing a solar eclipse?

The lenses in your eyes act like a magnifying glass, one that is 5 times more powerful than a handheld magnifier. Think about how you can use that typical handheld magnifier to focus the sun to burn holes in paper. That’s what happens when you look at the sun without appropriate eye protection. You focus the sun’s light on the retina, burning holes in light-sensitive photoreceptor cells, 5 times faster, and causing permanent blindness. Watching a partially eclipsed sun is when the damage occurs.

 

Do I need special equipment to view an eclipse?

Yes! Please be sure to follow these steps to protect your eyes from the partial eclipse:

  • Anyone planning to view the eclipse should wear a pair of solar viewing glasses or handheld solar viewers that contain solar filters. Always supervise children using solar viewing glasses or viewers with solar filters.
  • Using protective eyewear will allow observers to look directly at the sun during the eclipse. Sunglasses should not be used in place of solar viewing glasses– they will not protect your eyes from damage.  Homemade filters are also not safe to use to look at the sun.
  • Always inspect your solar filter before you use it – if it is scratched or damaged in any way, do not use it.
  • Do not look at a partially eclipsed sun through an unfiltered camera, binoculars or telescope – even if you are wearing solar viewing glasses. A special filter is required to view without damage to your eyes.

Remember – no matter where you are to observe the eclipse, looking directly at the sun, especially when it is partially covered by the moon, can cause serious eye damage or even blindness.

 

What else should I know before viewing the eclipse?

Remember to be safe and enjoy this fascinating event! For more information you can visit the web site of the American Astronomical Society or the American Academy of Ophthalmology.

Fun in the Sun – Safety Tips

Protecting our family from the sun’s harmful rays is constantly on our minds during the Summer months. Dr. Long offers us some tips on how to keep everyone safe and sunburn-free this Summer.

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D.C. summer is finally upon us and longer days (and no school!) mean lots more time outside.  Getting some extra sunshine is great for the whole family; just make sure a sunburn doesn’t get in the way of your vacation.  Here are tips to keep each member of your family – from the littlest baby to the most seasoned grandparent – from regretting their fun in the sun this summer.

Babies’ skin is thinner and more sensitive than adults’ and requires more vigilance in protecting it.  If you are out and about with your little one, try to avoid the sun from 11am-3pm when the rays are strongest.  Dress your baby in loose lightweight clothing when possible – long sleeves and pants will protect them better – and do your best to keep your baby shaded.   Don’t forget the adorable wide brimmed sun hat and glasses!

Sunscreen is important for every member of your family.  Choose one that advertises “broad spectrum” – meaning it will help block UVA and UVB rays – and go for at least SPF 30.   Look for ingredients like zinc oxide or titanium dioxide, which are physical barriers, meaning they sit on top of your skin and reflect UVA and UVB rays away like a mirror.  These ingredients are especially helpful for protecting sensitive parts of your body like your nose, cheeks, tops of the ears, and shoulders.  All family members older than 6 months should be lathered up at least 15-30 minutes before heading outside to ensure that the sunscreen is absorbed and ready to protect.  No sunscreen is truly waterproof so be sure to reapply after drying off from the pool or ocean as well as every 1 ½ – 2 hours.

While we tend to be most vigilant about covering up our babies, putting on breathable, comfortable clothing that covers the body is a good choice for all family members.  Clothes with a tight weave will protect you from the sun’s rays better than loose weave items.  Invest in UPF (ultraviolet protection factor) clothing which is manufactured specifically to better protect the skin from UVA and UVB rays and might be a good choice for children, those with sensitive skin, or anyone planning on spending a lot of time outdoors.

If a sun burn does happen, first make sure to get out of the sun!  Protecting burnt skin while it heals is important so be sure to either avoid the sun or cover the burnt area when outside.  If your child’s burn is red, warm and painful, you can treat it yourself with cool compresses (such as a cool washcloth applied directly to the skin), aloe gel, and ibuprofen.  However, if there are blisters or your child has fever, chills, headache or generally does not feel well, call your pediatrician.  Professional medical care may be needed for more serious burns.

When it comes to protecting your and your children’s skin this summer, preparation and vigilance are key.  Toss hats, sunglasses, and some sunscreen in a Ziploc in your bag.  Apply sunscreen even on cloudy days since 80% of the sun’s rays can get through clouds.  And reapply, reapply, reapply.

Happy Summer!

Epipen Recall

 

The U.S. Food and Drug Administration is alerting consumers to Meridian Medical Technologies’ voluntary recall of 13 lots of Mylan’s EpiPen and EpiPen Jr (epinephrine injection) Auto-Injector products used for emergency treatment of severe allergic reactions. This recall is due to the potential that these devices may contain a defective part that may result in the devices’ failure to activate. The recalled product was manufactured by Meridian Medical Technologies and distributed by Mylan Specialty.

While the number of reported failures is small, EpiPen products that potentially contain a defective part are being recalled because of the potential for life-threatening risk if a severe allergic reaction goes untreated. Consumers should keep and use their current EpiPens if needed until they get a replacement. Consumers should contact Stericycle at 877-650-3494.

As stated on the product label, consumers should always seek emergency medical help right away after using their EpiPens, particularly if the device did not activate.

At this time, the 13 lots identified – distributed between Dec. 17, 2015, and July 1, 2016 – are the only EpiPen lots impacted by the U.S. recall. Consumers who have EpiPens from lots that are not included in this recall, do not need to replace their EpiPen prior to its expiration date.

Product/Dosage NDC Number Lot Number Expiration Date
EpiPen Jr Auto-Injector, 0.15 mg 49502-501-02 5GN767 April 2017
EpiPen Jr Auto-Injector, 0.15 mg 49502-501-02 5GN773 April 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 5GM631 April 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 5GM640 May 2017
EpiPen Jr Auto-Injector, 0.15 mg 49502-501-02 6GN215 September 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM082 September 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM072 September 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM081 September 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM088 October 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM199 October 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM091 October 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM198 October 2017
EpiPen Auto-Injector, 0.3 mg 49502-500-02 6GM087 October 2017

 

The FDA asks health care professionals and consumers to report any adverse reactions or device malfunctions to the FDA’s MedWatch program, by:

The FDA, an agency within the U.S. Department of Health and Human Services, protects the public health by assuring the safety, effectiveness, and security of human and veterinary drugs, vaccines and other biological products for human use, and medical devices. The agency also is responsible for the safety and security of our nation’s food supply, cosmetics, dietary supplements, products that give off electronic radiation, and for regulating tobacco products.

 

EpiPen Recall Carton

Daylight Savings Tips

Daylight Savings Tips

Take baby steps – spring forward small amounts each day

Control the lights – dim the lights 30 minutes before bedtime

Use black out shades and close them early

Stick with your regular bedtime routine

Start early – try to ensure your child is well rested in the days prior to Daylight Savings

Anticipate behavior change – none of us do well when we do not get enough sleep. Be patient and sympathetic. Remember, within a week everything should be back to normal.

Dr. Joanna Sexter is published in the February 2017 issue of Pediatrics Journal

Increasing Awareness of Sudden Death in Pediatric Epilepsy Together
As seen in Pediatrics Journal
February 2017, VOLUME 139 / ISSUE 2

Lapham G, Gaillard WD, Sexter J, et al. Increasing Awareness of Sudden Death in Pediatric Epilepsy Together. Pediatrics. 2017; 139(2):e20163127

Abbreviation:
SUDEP — sudden unexpected (or unexplained) death in epilepsy persons
The death of any child is tragic. When the death is sudden and unexpected, it can seem especially incomprehensible. Henry was 4 years old when he died only a few weeks after his epilepsy diagnosis; his parents were devastated and never knew that death could occur; no physician had discussed the possibility with them. Henry was an otherwise healthy child, had a history of febrile seizures, and died in his sleep before his epilepsy workup was complete and before his medication was likely therapeutic. Since Henry’s death 8 years ago, together and independently, Henry’s parents, pediatrician, and neurologist have sought understanding and opportunities to advance awareness and prevention around epilepsy-related mortality. These efforts have launched a multidisciplinary partnership between Children’s National Health System and the University of Virginia to develop an educational research program to systematically raise provider and patient awareness of sudden unexpected (or unexplained) death in epilepsy persons (SUDEP) and other risks associated with epilepsy. This article gives voice to these different experiences and underscores the value of families and providers working together to improve care and prevent death.

Although epilepsy is a common childhood disorder, all of us were impacted by Henry, who died, suddenly and unexpectedly, as a result of his seizure disorder. Our partnership started with Henry’s mother, Henry’s pediatrician, and Henry’s neurologist and now includes an educational research program that incorporates parent advocacy, nursing, neuropsychology, psychiatry, neurology, and basic science expertise.

Henry’s Mother

As a bereaved mother, I was desperate to make sense out of our tragedy. I searched for understanding and connection to others who shared my experience and ultimately connected with other parents at Citizens United for Research in Epilepsy. I joined their efforts to fund epilepsy research, including SUDEP, and raise awareness about the devastating effects of epilepsy. Through this experience, I learned that rigorous scientific pursuit can affect change and that families can play an important role in the process. One effort that I am especially proud of is my work with other families and professionals to create Partners Against Mortality in Epilepsy, a biannual scientific meeting for families and professionals that seeks to advance SUDEP research and prevention strategies by bringing different stakeholders together to learn from one another. Through these efforts and others, I have met many bereaved family members and the most consistent thing I hear is that they wish they had known about SUDEP. I have more recently had the opportunity to engage with my son’s care team, who also cares deeply about this fundamental gap in knowledge. Most families want to know all risks associated with epilepsy and providers face barriers (ie, lack of knowledge, lack of time) when meeting these needs. Together, we are working to educate local providers and families about the risks associated with epilepsy and arm them with knowledge to mitigate harm and death.

Henry’s Pediatrician

As Henry’s pediatrician, it was not until a conversation with Henry’s mother that I heard the term SUDEP for the first time. I had no experience with a child ever dying from epilepsy, nor was this something I ever discussed with parents. Since Henry’s death, I am more cautious during the early stages of a diagnosis of epilepsy, when medication may not yet be at a therapeutic level. A specific change that I have instituted since learning about SUDEP is stressing, especially to parents of children with nocturnal and tonic clonic seizures, the importance of medication adherence, because seizure control is the best way to minimize SUDEP risk. I make sure that parents are working with their neurologist to achieve this goal. I also now talk with parents about nighttime supervision and monitoring options, which I previously had not discussed. There is 1 study that demonstrates the benefit of nighttime supervision,1 and I discuss with families the range of possibilities, including using an infant monitor, having the child sleep in the same room, or having a nighttime sitter. The benefit of sleeping in the same bed rather than using an infant monitor is that the adult may be able to detect the child’s seizure better if the seizure can’t be seen or heard on an infant monitor. With all supervision methods, there is the opportunity to be able to intervene to stop the seizure and assure safety. The drawbacks of nighttime supervision in the form of cosleeping include potential disruption to family dynamics and developmental socialization and that it is considered one of the greatest risks in sleep-related infant deaths. Nighttime supervision is costly when hiring a nighttime sitter that is not the parent, and disrupts sleep schedules if it is the parent; however, closer monitoring may only be needed on a short-term basis until there is confidence regarding the level of control and frequency of seizures. In addition to supervision, there are ongoing studies regarding monitoring devices, which include monitoring heart rate and respiration. The hope is that an alarm could alert the parents, who could then go in the child’s room and ensure that the child is in a safe position and administer a rescue medication as needed. The drawbacks are that these devices are still under investigation and current devices may give families a false sense of security or produce too many false alarms. Ultimately, the family will decide how to monitor seizures by considering the costs and benefits of available options. Regardless, I recommend that the family have rescue medications on hand in case of prolonged or clusters of seizures.

Discussing these options with patients and their families introduces them to the term SUDEP and underscores the importance of treatment adherence. During these conversations, I encourage parents to discuss mortality risk with their child’s neurologist. Collaboration among pediatricians and pediatric neurologists is critical to the successful treatment and education of our patients with epilepsy and their families; however, we appreciate that in more rural environments, this may present a challenge due to distance. Yet another reason that the primary care physician needs to be well informed.

Henry’s Neurologist

As Henry’s neurologist, I was taught during my pediatric and neurology training that epilepsy is a benign disease and that when children die, the cause is primarily from the underlying disease (eg, brain tumor, degenerative, or metabolic disease). Henry proved, sadly, that epilepsy can be deadly and is not a benign disease. In fact, 24% of patients with childhood onset epilepsy will die within 40 years, 3 times the expected mortality rates.2,3 Before Henry’s death, I would wait for families to raise their fears, to the extent they occurred, by asking them nonspecifically if they had any questions. If the concern for mortality was not raised, I would often defer the conversation for another visit, if at all. After Henry’s death, I still wait patiently for families to raise their own questions and fears, but if that question does not arise before the close of a clinic visit, I now directly ask what their greatest fear is, and it is invariably harm from seizures and death. When there is no response to my question, then I ask directly, “Do you fear your child will be harmed or die from their seizures?” Capable and skilled physicians do not often discuss mortality.4, Yet, families wish to discuss these matters at the first visit, not later, and expect their doctor to do so.5,6 This is part of our duty and responsibility as physicians. For many children who have “uncomplicated” epilepsy, the data may be reassuring because most children’s risk of death is similar to all children, although death in this low-risk population can occur.3 SUDEP incidence is lowest in young children, but is higher in adolescence (cumulative risk, 1.6%), and peaks in younger adulthood (ages 31–40 years).7 The overall risk is 33 per 100 000 patient years, but 9 per 100 000 patient years if uncomplicated (normal exam, normal MRI, no developmental disability).3 For other children, if epilepsy begins in early childhood and never fully remits, the average cumulative risk of SUDEP is ∼8% by age 70 years.7 The large majority who die will do so from their underlying disease and from pulmonary failure. Of the 15% to 20% of epilepsy-related deaths, the large majority are SUDEP-related, but suicide should not be forgotten.3 Those at highest risk of death (97 per 100 000 patient years) have early epilepsy onset and frequent generalized tonic clinic seizures (the risk declines with

Developing Our Partnership

Henry’s story and those of others who have died unexpectedly are a wake-up call that there is too much we do not know. It became clear to all of us that education is our most powerful tool and that we do not need to wait for all of the answers before we start preventing SUDEP. At the time of Henry’s death, searches for information on the internet came up empty; since then, there are resources for providers and families with information about the facts, prevention strategies, printed brochures, and how to talk about SUDEP (www.epilepsy.com/learn/impact/mortality/sudep).10 Despite this progress, work still remains to be done. Over several meetings, we developed our first project that brings together many areas of expertise and seeks to change primary and specialty care provider knowledge and practice. On a local level, we are implementing systems that will lead to improved quality of care and, ultimately, we aim to change outcomes. Our work has leveraged local foundation funding and we are connected with broader, federally funded efforts that delineate the risks of SUDEP, examine possible mechanisms of SUDEP (including cardiac failure, cardiac arrhythmia [eg, channelopathies], central apnea, autonomic instability, and pulmonary edema), and, most importantly, identify effective monitoring and devise interventions to decrease mortality. We support efforts to work with medical examiners to recognize epilepsy as a cause of death, promote registries that include DNA collection, and develop clinical and translational research to advance understanding.

Our partnership between families and providers has played a significant role in highlighting care and education areas that needed strengthening and, in the case of SUDEP, needed to be brought out of the shadows entirely. Moreover, our work together has shaped a program of research that includes a novel first finding that 85% of pediatricians do not know about SUDEP.11 Through their energy and drive, Henry’s family has worked closely with our institution and private foundations to promote important SUDEP initiatives. Their efforts, along with those of so many other families and providers, have accelerated the study of an important field (mortality in epilepsy) and, in doing so, have enabled the National Institutes of Health to fund a significant multicenter SUDEP research effort (http://csr.case.edu/index.php/Main_Page). Furthermore, these efforts have helped to create a scientific committee within the American Epilepsy Society dedicated to SUDEP, additionally solidifying the importance of this issue within our community. When families and providers unite, they can more efficiently impact multiple levels of research and care that advance understanding and action around the full scope of a disease.

Stork’s Childbirth Education Classes Start February 13th

Stork

STORK is coming to Spring Valley Pediatrics! Check out their website for upcoming class dates. For all of our expectant parents, don’t forget to sign up for Stork’s Childbirth Education class offered at our office on Monday, February 13th, 2017. Stork teaches a variety of classes for expecting, new and even experienced parents.